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National Organisations

Family Fund

The Family Fund helps families with severely disabled or seriously ill children and young people aged 17 and under to have choices and the opportunity to enjoy ordinary life. They give grants for things that make life easier and more enjoyable for the disabled child, young person and their family, such as washing machines, driving lessons, computers and holidays.

 

To find out if you are eligible to receive a grant visit: http://www.familyfund.org.uk/ 

or call on tel: 0845 1304542.

 

Contact a Family

Has launched a new online one-stop shop for benefits advice and money tips for families with disabled children. Cash Counts includes:

  • An online benefits calculator, allowing families to work out how much they are entitled to
  • A top tips guide on the benefits available to families with disabled children written by the Contact a Family helpline
  • A frequently asked questions page to help families navigate the complex benefits system.

 

You can go direct to the new Cash Counts service here:

http://www.cafamily.org.uk/media/381321/countingthecosts2010.pdf

 

Link to other useful organisations:

http://www.cafamily.org.uk/media/473841/useful_organisations.pdf

 

The Disabled Living Foundation

Is a national organisation that provides free, impartial advice about all types of equipment and mobility products for disabled adults, disabled children, older people, their carers and families. The Foundation can help the person you care for to find solutions that enable them to stay active and independent. It provides a free helpline service.

 A free factsheet - 'Telecare made easy' is particularly useful

 Telecare is a technology-based system that offers new ways to manage home safety, enabling vulnerable people to live independently for as long as possible, giving peace of mind for disabled people and their carers. It consists of a range of sensors positioned throughout the home, which alert the carer, or a monitoring centre, if there is a problem in the home, such as a gas leak or fire, or if the person they are caring for has a problem and needs assistance.

The purpose of Telecare is not to replace the carer, but to allow them to leave the house, or get a good night's sleep, confident that they will be informed if an emergency occurs. Examples include fall detectors, bed/chair occupancy sensor and epilepsy sensors.

 

Telephone 0845 1309177 or visit www.dlf.org.uk

 

Home Access

Home Access is a national government programme that has provided more than 250,000 grants for eligible low-income families in England. It has enabled them to buy a computer and software to support learning at home for their children. As part of the programme a large number of Home Access packages with Assistive Technology are available for children who have a severe disability or special educational needs.

 

ICE 

'In Case of Emergency' is a program that enables first responders, such as paramedics, firefighters, and police officers, to identify victims and contact their next of kin. The idea is that you store the word "ICE" in your mobile phone address book, and against it enter the number of the person you would want to be contacted "In Case of Emergency". In an emergency situation, ambulance and hospital staff will then be able to quickly find out who your next of kin are and be able to contact them. It's as simple as that, and for more than one contact name you can use ICE1, ICE2, ICE3 etc.

 

Living made Easy

Provides clear, practical advice on daily living equipment for young people.
http://www.livingmadeeasy.org.uk/children/

 

Working Families

Everyone who has a child usually has to consider their options for caring for their child whilst maintaining financial security. If you are finding it difficult to decide what to do for the best then it is worth checking what benefits and tax credits you are entitled to or would be entitled to if you make changes to your working life.

 

Working Families offers advice for rights at work to parents and carers to help them achieve a work-life balance. For more information visit http://www.workingfamilies.org.ukor call their parent carer helpline on tel: 0800 0130313.